Monday, June 22, 2015

Summertime Is Calling


Summertime Is Calling

Summertime is calling...but not to me.
Barbecues are being enjoyed all around me to see.
Soaking up sunshine at beaches
Warm breezes caressing as they picnic at parks
Parades of the present, reminding of parades past
Brief glimpses of fireworks from the back door
No point in wanting to see more...
Festivals, I don't like crowds, and I don't like noise...
but I remember a tasty turkey drumstick..
would like just one more?
Inside is where my responsibility lies...
In staleness and silence
Hard to envy, hard to not cry
So much has been missed, so much missed still
How long will it go on, how long till?
(thebearhugwaltz, Donna Webb May 28, 2010)

Holidays/Special Days

PICNICS, PARADES, PARTIES

(thebearhugwaltz)
I have written about how even though this is my favorite time of  year, it is also my worst time.  This is the season of picnics and parades and outdoor parties.  We do get invites, but often the work involved to for both of us to attend is just to much.  Setting up one or more sitters for mom so that we can go to a gathering, and not watch the time to rush back home.  It is no fun at all when we have to go by our self, and one stay home, so most of the time, we just don't go anywhere. 

As I thought about this, I went back to my being invisible post, where I had talked about how I had wanted someone to bring me free pancakes at a local spot was offering.  What if family/friends considered bringing a dish or even more then one from a picnic, cookout or party, to a home where they knew a caregiver was, who couldn't get out and enjoy these functions?  Does anyone think about something like that?  I am not just referring to myself and my husband, but any caregiver who cannot go and enjoy these good times in the summer.  Of course this can apply to any holiday or function where food is involved, and these individuals would be there if it was not for their caregiving responsibilities.

The 4th of July is coming up, it will be a quiet and lonely day, watching all the cars driving by going to the parade and then back home to get ready for their picnics and cookouts.  Then at night driving downtown to watch the fireworks.  Some of these things, we pretty much stopped doing long ago when the kids didn't want to anymore.  But to have a choice to do them, that we really don't have anymore.  

It is not just missing out on all the wonderful summer foods, some of which we could fix, but it is certainly not the same, it is that someone thought about us, and they took the time to bless us with some picnic goodies.  It is not being invisible, it is someone caring about us here within these 4 walls. 
Does anyone ever think about what good deed they could do for someone?  Well, here you go...go bless a caregiver with some wonderful summer treats!  Little things mean alot believe me!

Saturday, June 20, 2015

WANDERING

She's a Wanderer, She's a Wanderer, She Roams Around, Around, Around

(hebearhugwaltz.com  Nov.6, 2009)
I can’t say how many times I would get up during the night or early morning hours, look over at mom’s house and see lights on, not just in her bedroom, but in the front room too. One time, my husband happened to be getting back late in the evening and saw her kitchen light on. He went to check on her and she was getting ready to eat breakfast ….at midnight.


Day and night, night and day, it all blended together for her most of the time. With no one living with her to schedule her days and nights, she did her own thing. When she woke up, if she decided it was time to get up, even if it was still dark out, she would get up, get dressed and go and have breakfast, or go sit in the front room for and read or watch TV for awhile.


Living next door, we checked on her in the morning and during the day as we could and then again in the evening. We did things for her that she could no longer do. But keeping her in bed at night, that we couldn’t do because we weren’t physically living in her house….yet. She also spent a lot of napping during the day, basically because no one was here and she would get lonely or bored, so of course that didn’t help her to sleep during the night either.


When we had the fire, the only thing we could do was to move in here with mom, or we would have been homeless. A new chapter in our lives, from a book I never thought I’d be writing. That was my grandma’s house. It was over 100 years old. Grandma raised her family in it, dad and mom raised the five of us in it, I raised my four sons in it, and all but one of my seven grandchildren had spent time in it. So, that which contained my lifetime of memories was now a blackened shell.


But we were well, and now faced with the job of making this little house of one, a house of three.
We had to sleep on the hide-a-bed in the front room, and many times during the night we would be awakened by the ‘wanderer’. She would wake up, go potty, and decide to get up and get dressed and come out of her room. She would turn on the kitchen light, or walk into the front room and sometimes turn on a light in there, where we were trying to sleep! She’d head for the bathroom, turn on another light! She wanted to get her teeth! Now all this would occur in any sequence and at any time of the night or early morning hours. Every night we were ‘chasing’ her back to bed at some point! Every night we would awaken to the dreaded metallic click! Click! Click! As her walker made it’s way across the kitchen floor, knowing that confrontation was soon to begin again. Sometimes, she would just walk into the kitchen, look at the clock, turn around and go back to her room and to bed, yay! However, that was few and far between. This was the nightly routine for about six months. Nightly sleep interruptions, yet those were the easy nights!
The weeks following when she broke her ankle, and had the black out episode were very taxing emotionally and physically. They had affected her mental and physical abilities greatly. She did recover well from the ankle break and walked with her walker again, but always had to have someone near by. Her mental acuity is what it is, and we deal with the fuzzy moments, repeating conversations or information as often as we have to.


She has been totally depended on us since that time, although she will state, I don’t need anyone to look after me! She still has a great sense of humor. She loves to watch The Chronicles of Narnia, Jumanji and she gets a good chuckle at the Three Stooges! She said to me one day, “We sure do have fun here don’t we?” and another time she told me I was more fun than a barrel of monkeys! That was almost 4 years ago, and the realities of care giving have long sense set in. But we will still try to keep humor going. You have to do that for everyone’s sake.